Choosing assistive equipment for a neuromuscular disease patient starts with understanding goals, environment, and needs, ...

For columnist Betty Vertin's 19-year-old son, Chance, becoming a caregiver to his brothers has benefited the entire family.

Struggling with increasing leg weakness due to FSHD progression, columnist Robin Stemple turned to what he calls the "knee ...

Two interconnected themes — community and hope — dominated conversations at this year's MDA Engage symposium in Dallas.

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google Advocacy doesn’t come naturally to everyone. Often, you learn to ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google Last Friday, my girlfriend, Amanda Yip, and I celebrated the ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google It seems to be a theme in our lives: Lifts and elevators work ...

Lily Sander will never forget what it was like to meet other people with neuromuscular diseases the first time she attended Muscular Dystrophy Association (MDA) Summer Camp. Living with ...

The U.S. Food and Drug Administration (FDA) has given the go-ahead for a mid-stage clinical trial testing the oral therapy forazapadin — designed to protect muscles and potentially enhance their ...

Tuesdays are my writing days. My column publishes on Fridays, and the draft is due early Wednesday morning, so I write on Tuesdays. I should be a column or two ahead, but I’m a busy mom, and it never ...